Braxton is still asleep...There is alot of white noise in this room and it's not near the nurses station so it's alot quieter than other rooms we've had. Nurses came in early to take blood and change fluid and med drips but, they pretty much leave him alone til 10ish.
Yesterday, Brax and I spent the afternoon just hangin out. He was tired from being up early and then being sedated for the spinal tap. He didn't, really, recover from that all day and was low energy. However, with the roof cam to keep him busy and the awesome Twins WIN lastnight the day ended up pretty well.
Chemo, this time involves a downshift in toxic intensity of drugs. Chemo treatment #1 was a warm up, treatement #2 was hard hitting with methotrexate and doxyrubicin ( a very toxic combo of cancer killers), #3 eliminated the methotrexate because of kidney damage but still used doxyrubicin, and #4 and #5 uses methotrexate and cytarabine. Cytarabine is also a hard hitter but, we've been told, is not as much of a contributor to white cells dropping as the doxyrubicin. White cells, typically, will not need the added boost of the Neulasta injection after treatment either. SO...there is a good chance that Braxton will not develop a fever and have to come back to the U between treatments. We'll see... Cytarabine is given as a continuous 24 hr infusion for 6 days. It started yesterday and will end on wednesday. Braxton is not able to wander the hospital (or outside) during this visit so, it's so great that he has the very cool room to keep him more comfortable and stimulated. Staying in one place for 7 days is hard :(
Results from the PET scan are very positive. Braxton's left leg looks like it is healing. No visible tumors lit up. However, the spot on his right arm lit up brighter. Braxton's team isn't sure if that is a tumor and, if it is, why it's not responding to treatment. After chemo is finished, in early June, there may be another biopsy surgery. Please continue to pray for healing of Braxton's body and spirit.
On the homefront, Zoe is heading out for an afternoon of canoeing on the St. Croix river, with her GS troop. Bayley is being a mom, this weekend, for a computer chip baby for a class at school and David is handling Paul, Emma and Gretchen. :)
-posted by Beth
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