We're back for round 3! Braxton's kidney's are not back to full strength (about 2/3 better) but Dr. Burke (and the team) have decided to keep him on the chemo schedule and just eliminate the methotrexate chemo drug for this round. It's a heavy hitter and, mostly, responsible for the mouth sores. Braxton's kidneys can't handle it this time but he will have it in May.
Braxton had a pretty good day on the floor today. Beth and Nate (from church) came to visit for a couple hours. They talked for a bit and played SET: The Family Game of Visual Perception. Brax liked it! Thanks for coming by! Braxton's favorite nurse aide, Mike, is with him today. He's a young goofy guy. Likes to talk sports and video games. We have a window bed again and no roomate again. The other bed in the room is a crib...hopefully we won't have a baby moving in for the weekend.
Braxton is playing with his new PSP, given to him by the Hope For Henry Foundation at the hospital. They provide gifts for all of the kids in long term care because "hospitals can be boring". Henry was a little boy who died from a blood desease when he was 7. The foundation sponsors many of the family events, here, on the peds floor.
Braxton is in good spirits and has a great rapport with the nurses. David is geared up for a weekend of single parenting. Thanks to friends, our refrigerator is stocked! And the Y pool is nearby for entertainment.
Thankyou, Sue, for gifts for Braxton and all of us too! The prayer shawl is beautiful and a great companion to Braxton's prayer quilt. Both made by women from rural Sout Dakota churches and recieved, ironically, on the same day! Stitched with prayers, they are very special.
have a good weekend everybody...
-posted by Beth
more later...
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BRAXTON RULES!!!!!!!!!!!! and the food in the cafetetria isn't so bad either. Had a fun time hangin out wit u. David rented sweeney toff 4 me, AND ITS AMZING!!=) u & mom wouldn't like it, 2 much blood, but im ok. I do find it 1 of the creepiest things ive ever seen, so im not completely freaky. but the nusic was the best part, and johnny depp can definetly sing. & it was cool 2 c teh guy who plays snape in the harry potter movies in sweeney todd also. I put a pic of the lymphoma cancer ribbon on my profile on the MV speech website. it's light green, dad was dissapointed 2 hear it wasnt purple, but he would change the color of the sky 2 purple if he could. just google search "cancer ribbons" if u want2 c it urself. cant wait 2 c u again, its nice 2 just hangout like that. I wich i could sleep over, that would be fun, but i cant, & that suks. cant think of anythin, cu l8er (i say in a british accent cause i just watched a movie wit british characters)
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