Tuesday, April 1, 2008
Day 19: Spinal Tap & Normality
Another day at home for Braxton. Another day of feeling pretty normal.
Braxton spent most of yesterday playing video games with his good friend Brendon who is on Spring Break. The two enjoyed being normal (whatever that means) twelve and thirteen year-old boys doing normal boy things. It was nice to have an extra friend in the house and nice that Braxton has had another day without being too sick.
Today Braxton went to the hospital for a spinal-tap. He was not put under for this one, but just had some local anesthesia. Braxton said it went fine and that it didn't hurt.
Braxton is also supposed to receive a shot in the next day or two. The shot is an injection of GCSF, a medication that is supposed to help control his white cell count between chemo treatments. The good news is that they have developed a new type of injection so that Braxton only has to have a shot once a month instead of daily. The bad news is that each injection is very expensive ($3,000) and it is hard to get hold of, even if insurance is paying for it.
We are lucky to have very good insurance coverage, but we are still awaiting delivery of the medication Braxton needs.
But the bottom line remains that Braxton is doing well, he has not yet gotten sick, and we are grateful for that!
+ posted by David
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